Living with an Undiagnosed ConditionThis section is a place to share stories about Living with an Undiagnosed Condition. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download It all started w/a real bad UTI I went almost a year w/o a diganosis. I was treated like an idiot by the medical profession and in all of it, they took out my gallbaldder (it was fine). It all started w/a real bad UTI that produced huge clots and lots of bacteria. In the middle of the UTI I developed upper abdominal pain that radiates straight through to the back (does not wrap around). I finally went outside this community b/c I knew I wasn’t crazy and it really made me determined. I found a urologist 90 miles away. Hence the IC diganosis. I have been through the dilations, DSMO, Elmiron, Pamelor…the whole nine yards. I do not take these medications presently but I still take pain medication everyday. It is the upper pain that bothers me the most, not so much the bladder itself. I had another cysto yesterday and my bladder has not responded. My doctor thinks that the bladder nerves were disturbed and are inflammed which is the root of all my pain. So as long as the bladder stays irriated, so do the nerves. Has anyone else heard of or experienced this?? Comments
November 2007
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