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Living with an Undiagnosed Condition

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one in a thousand


by: wanda on Wed, Mar 26 2008

i am 41 years old and in 2003 i got dizzy one day and went to the er they said that i had the flu to go home and gave me some theraflu. a week later in happened again only it was worse and i could not walk. i went to the er again they said you have the flu. go home rest take your medication. so a few days later i woke up with a crick in my neck i could not turn my head and i felt really bad but i did not go to the doctor just figured i slept wrong then one morning i woke up and got out of bed and i hit the floor i could not walk.

my mom took me back to the er but when we got the i could feel nothing from my head to my feet i was paralized. i spent 3 days in the hospital and seen alot of doctors finally they came in and said that 1 out of 1000 people could not be diognosed and i was 1. since then i have migraines almost everyday and i woke up and my entire body hurt. one doctor said ra the next said fibro myalga [fibromyalgia] or lupas [lupus]. then i went to a new doctor and he said i had neoropathy [neuropathy]. i have taken so many pain pills nothing helps. i hurt in my sleep and i hurt during the day all day. i dont know what is going on but i feel like i am dying. family members dont understand. sometimes i just sit and dont talk because i dont want to burden them with another day of my problems. i am at a dead end as what to do. this living with pain like this is terrible. no one understands. is there anyone else like me?

Comment on this

Comments
  1. Thu, Mar 27 2008
    I've heard of extremely low potassium levels being the cause of complete numbness in the lower limbs....Read

March 2008

  • i cannot write - by sjb - (Mon, Mar 31 2008)
    i am 27 and everyone thinks i am normal and wonder why i do not look for a better job. i have had problems since young, i made it through college with the help of dictating my papers to my mother to write the words on paper for me. [more..]
  • Unexplained Coma Events - by Tuppy - (Mon, Mar 31 2008)
    My story began 4 yrs ago. I was at home doing housework then woke up in the ICU ward in hospital 4 days later. Despite extensive tests - no cause has ever been found. Last year it happened again on 2 occasions and once so far this year. [more..]
  • one in a thousand - by wanda - (Wed, Mar 26 2008)
    i am 41 years old and in 2003 i got dizzy one day and went to the er they said that i had the flu to go home and gave me some theraflu. a week later in happened again only it was worse and i could not walk. [more..]
  • Passing Out Episodes - by Josephine - (Tue, Mar 25 2008)
    I have had 2 episodes-one in 8/06 and one 9/07. Each time I had a brief black our(a few seconds) where I fell to the floor. I’ve had numerous tests which all came back fine. [more..]
  • I’m burning - by Barb - (Thu, Mar 06 2008)
    It started the day after xmas, I started feeling really weak and out of breath, shooting pains in legs. I went a couple weeks like that then went to Dr. and he ordered a diebetes [diabetes] and lupus test. [more..]
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