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Coping With Caregiving

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Having a parent with a brain tumor


by: Karen on Mon, May 14 2007

My mom was first diagnosed in 1994, and is still alive today.
She has a tumor called an oligodendrioma and she’s been fighting it for nearly 13 years.
When the tumor was first discovered in late 1994, they did surgery and then many months of radiation. It was the size of a ping pong ball. It was believed that it was gone, so then she did the usual MRI’s every 3 months, then 6 months, then 1 year and then up to every 2 years. In between one of the two years, her tumor grew back to about the size of a pea, and was discovered in 2002… at almost the exact time of year.

She had surgery again, followed by 8 months of chemotherapy ( she had had her lifetime dosage of radiation from the previous treatments, and any more would have been more harmful than beneficial.) At this point the tumor was so small it couldn’t be detected on an MRI, so they stopped the chemo

The tumor started growing back last year, and she resumed chemotherapy in July of 2006. She’s been doing chemo every month ever since.

I’m pretty sure she’s not going to survive though… she gets siezures ( or shakes, as she preffers to call them) fairly often, more like every day now. And whenever she gets them, she loses motor control on the left side of her body, simmilar to someone who’s experienced a stroke. Each day it’s getting worse- sometimes I can’t even understand what she’s saying when she’s tired.

Comment on this

Comments
  1. Mon, Mar 31 2008
    My mom just recently passed away march 19th of this year with this type of brain tumor. She had it for 10 years, so she basically had it since I was 1...Read

May 2007

  • Mother has lung cancer and never smoked - by Sharon - (Tue, May 22 2007)
    If anyone reads this please respond. 4 months ago she was diagnosed at stage 4. Because she is 85 they said no chemo or radiation should be given. [more..]
  • Having a parent with a brain tumor - by Karen - (Mon, May 14 2007)
    My mom was first diagnosed in 1994, and is still alive today. She has a tumor called an oligodendrioma and she’s been fighting it for nearly 13 years. [more..]
  • huntington’s - by ed - (Mon, May 14 2007)
    not looking for magic, my 66 yr. wife forgot how to do everything in the last 6 days. I care for her at home. [more..]
  • My Dad has Lung Cancer - by kp - (Tue, May 08 2007)
    The lung cancer has also gone to the brain. He suffers from seizures but currently takes meds to manage this. [more..]
  • My husband is succumbing to brain cancer at 55 - by Rebecca - (Mon, May 07 2007)
    It began with a 1/1/06 GI bleed, emergency surgery, and no one had any idea the reason he was increasing his usage of NSAIDS was due to brain cancer [more..]
  • My father in coma - by PINKU - (Mon, May 07 2007)
    My father suffered a massive heart failure 27 months back, and his breathing stopped completely, pulse zero, heart beat zero, blood pressure zero. [more..]
  • My Mother’s stomach cancer… - by DM - (Wed, May 02 2007)
    My 71-year old mom was diagnosed with cancer in the upper region of her stomach. She underwent complete removal of stomach and surrounding lymph nodes. [more..]
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